Why am I walking?   I am participating in Easter Seals’ Walk With Me because I want to spread hope and raise funds to help individuals and families living with all types disabilities.   We each have a unique story to share.  I hope you will read mine below and join my team to support all of the amazing work Easter Seals does for individuals like me.

"They said I would never walk, now I can run.  They said I would never talk, now I speak over 60 words.  What's next?"   Evelyn Murray - Age 8

Evelyn was born as a healthy, happy baby in September of 2013. Everything seemed fine until she began having seizures at three-months old and she then progressively began missing early developmental milestones.  Genetic testing revealed that she had STXBP1 related disorders, a very rare genetic mutation that causes a broad range of symptoms including early-onset seizures, developmental delays, intellectual disability, muscular hypotonia, spasticity and ataxia.  Additionally Evelyn has tremors, difficulty with motor planning, sensory processing disorder, limited speech and severe ADHD.  

All that aside, Evelyn is a perpetually happy, sweet little girl!  She wakes up happy and falls asleep happy.  She is blessed with truly living only in the moment.  She brings joy to everyone she meets!  She is a true angel with vibrant personality and a wonderful sense of humor that permeates every space she enters.  Her indomitable spirit and tenacity drive her to meet every challenge.  She literally NEVER stops trying…ever!  

After great success in a special needs preschool, her family diligently researched the right school for Evelyn's next phase of education.  The Caroline School at Easter Seals proved the perfect fit.  STXBP1 is a rare genetic disorder with less than 750 cases worldwide.  As only God could effectuate, Evelyn ended up at a school that was born from another family's desire to create a school that served their child when no other existed.  That child was Caroline DeLuca who, incredibly, had the exact same STXBP1 disorder! 

Evelyn has thrived at The Caroline School, making strides far beyond what her medical team or family ever expected.  Her teachers, Sandra Guerra, Beatrice Zubieta, Tiana Hine and Head of School Tabitha Hernandez have tailored an educational plan that has pushed her to be her best, within a loving, caring and motivational environment.  But that is not all that Easter Seals does for Evelyn.  Each week she receives Physical, Occupational and Speech Therapy from the most amazing, attentive team of ES therapists.  They coordinate and communicate with each other, her teachers and family to identify and work towards Evelyn's goals.  Every week we are all in awe of the strides that Evelyn continues to make!

We are proud and honored to have Evelyn serve as a Walk With Me 2022 Ambassador! Knowing her, she will probably run!

For 75 years Easter Seals Greater Houston has helped veterans adjust to civilian life with service dogs and mental health services, taught infants with developmental delays how to walk and talk, given children with cerebral palsy a sense of community through camps and play groups, mentored teens with autism so they can feel prepared and empowered to enter the workforce, and so much more! Easter Seals is an essential partner in providing help, hope and answers to our loved ones with disabilities.

Please join me on this journey so Easter Seals can continue providing life-changing services to the 14,500+ veterans, service members, and children and adults living with all types of disabilities served each year in the Greater Houston community.

How can YOU help? Register to walkor make a donationin support of my fundraising effort

Easter Seals Greater Houston is a fiscally responsible organization, and one of the most efficient charities in Texas, with $0.91 of every dollar going to direct client services in Houston.

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